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Full Calendar of Events for 2017

  • January 21, 2017 - Annual ALS Symposium. Marriott Biscayne Bay
  • February 3, 2017 - Support Group
  • March 3, 2017 - Support Group
  • April 1, 2017 - Memorial Service Oleta River Park
  • May 5, 2017 - Support Group
  • June 2, 2017 - Support Group
  • July 7, 2017 - Support Group
  • August 4, 2017 (Support Group Romm 1270A)
  • September 1, 2017 - Support Group
  • October 6, 2017 - Support Group
  • November 3, 2017 - Thanksgiving Lunch
  • January 27, 2018 - Annual ALS Symposium Invitation will be mailed

Conference Room  from 11:00 am – 12:30p.m.
If you have any questions, please do not hesitate to contact Ginna, Meri or Ashley at 305-243-7400.

Our Annual Memorial Service offers a non-denominational Celebration of Remembrance for those who have lost the battle with ALS. The ceremony is held at Oleta River State Park in North Miami Beach each year. For more information call: 305-243-7400.

The Perez Golf Classic is an annual event, now in its 22nd year, held in memory of José A. Perez, who lost his 10-year battle to ALS in 2001. The golf Tournament will take place on in April, TBA, at Doral Golf Resort, White and Gold Courses, 4400 NW 87th Ave, Miami. For more information please contact: or call 305-255-3500.

The Annual ALSRF Run/Walk features both 5K and 10K routes that take participants through Coconut Grove in Miami, Florida. Race proceeds are used in part to assist patients in the tri-county area living with ALS in obtaining the care and equipment that they would not otherwise have been able to afford. Race proceeds also support the ALS clinical and research programs at the University of Miami. In 2013, the walk/run drew more than 2,000 participants around the beautiful Coconut Grove area.  The event date will be announced soon.  For more information, please visit

The ALS Patient Symposium is an annual educational event for patients, family and healthcare providers, to be informed with the latest information about ALS.  Additionally, more than 20 companies host booths displaying different equipment or services available for ALS patients. The event will be held January 28, 2018 at the Marriott Miami Biscayne Bay (1633 North Bayshore Drive, Miami, FL, 33132). 11:00am-3:00pm. Lunch will be served. Parking $13. to Meri Jaime by January 19th. RSVP 305-243-7400

Monthly Patient Support Groups are held at the University of Miami with the goals of providing education about ALS and services/products that may be of help and value to patients and families living with ALS. In addition to providing emotional and psychological support, these meetings also offer opportunities for patients and families to interact and network, learning from each other’s experiences. Our support groups are always facilitated by a professional who is well informed about ALS, and usually we have more than two different specialists from the Kessenich Family MDA ALS Center who help to answer questions related to their fields. Support Group meetings are held on the first Monday of each month, in the 13th floor conference of the Clinical Research Building at the University of Miami (1120 NW 14th Street, Miami, FL, 33136) from 12:30 pm.

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