Help us use the electronic health record for research and quality improvement

Recruiting clinic patients

Study Name
CReATe Consortium: CAPTURE-ALS (Clinical Procedures To Support Research in ALS) Study
Michael Benatar, MD, PhD
Study Type
Observational, Cohort, Prospective
Eligible Population
Individuals with a diagnosis of ALS or a related disorder (e.g. PLS, PMA) receiving care at a clinical center that uses Epic as its Electronic Health Record (EHR) system
Study Purpose/Goals

Utilize de-identified information in the Electronic Health Record (EHR) for research purposes to characterize the natural history of ALS and related diseases.

  • Provide detailed demographic information
  • Allow us to collect information from your medical record
  • Provide a blood sample (optional)

Join our family - together, we can change the course of this disease.

Join our family

Together, we can change the course of this disease.