Help us use the electronic health record for research and quality improvement

Recruiting clinic patients

Study Name
CReATe Consortium: CAPTURE (Clinical Procedures To Support Research) Study
Michael Benatar, MD, PhD
Study Type
Observational, Cohort, Prospective
Eligible Population
  • Individuals with a diagnosis of ALS or a related disorder (e.g. PLS, PMA)
  • Receiving care at a clinical center that uses Epic as its Electronic Health Record (EHR) system
Study Purpose/Goals

Utilize information in the medical records for research purpose.

This study aims to systematically gather a clinical dataset through the EHR using a standardized approach to characterize the natural history of ALS and related diseases.

  • Provide detailed demographic information
  • Allow us to collect information from your medical record
  • Provide a blood sample (optional)

Join our family - together, we can change the course of this disease.

Join our family

Together, we can change the course of this disease.

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