News and Events
Miller School Studies Pave the Way for the First Pre-Symptomatic ALS Trial for Individuals with SOD1 Genetic Mutation
For more than a decade, investigators at the University of Miami Miller School of Medicine have been studying the earliest …
ALS Center investigators host first international Pre-Symptomatic ALS Workshop
The first Pre-Symptomatic ALS Workshop, organized and hosted by Dr. Michael Benatar (University of Miami), took place in Miami on …
Rare Diseases are Not Rare but Awareness is Endangered
To help raise awareness about rare diseases, the National Center for Advancing Translation Science (NCATS) hosts an annual ‘Rare Diseases …
The Future Is Now: ALS Research at the University of Miami
The ALS Center’s own Michael Benatar MD, PhD spoke on “The Future is Now: ALS Research at the University of …
Biomarkers for ALS Therapy Development
Dr. Michael Benatar, Executive Director of the University of Miami’s ALS Center, gave a webinar about Biomarkers at the …
CReATe Consortium ALS Untangled Series: Ep. 36 – Vitamin E
Vitamin E is one of the most popular, and most thoroughly studied, supplements in patients with ALS. Although it is …
University of Miami ALS Center to Receive Critical Funding from the State of Florida
On June 29, 2020, Governor Ron DeSantis approved $800,000 in funding for the Bitner Plante ALS Initiative of Florida in …
Research survey for rare disease patients and their families about impacts of COVID-19
How is the novel coronavirus pandemic impacting people with rare diseases and their families? Complete the 20-minute research survey from …
UM Researchers’ Validation of ALS Biomarker Could Accelerate Development of New Therapies
“Therapy development for ALS is challenging for many reasons,” said Michael Benatar, M.D., Ph.D., professor of neurology, the Walter Bradley …
CReATe Consortium Aims for ALS Breakthroughs with NIH Renewal Grant
An international research consortium led by investigators at the University of Miami Miller School of Medicine has made significant progress …
The Kess Golf Cup in New York
The Kess Golf Cup is an annual golf day organized by Paul, Mark and Barbara Kessenich, children of the late …
Annual Memorial Service at Oleta River State Park
Our Annual Memorial Service offers a non-denominational opportunity to remember and celebrates the lives of those who have lost the …
Annual ALS Patient Symposium
The ALS Patient Symposium is an annual educational event, offering patients, family members and health care providers an opportunity to …
University of Miami ALS Center Annual ALS Gala
With amazing silent auctions, delectable cuisine, VIP cocktails and music, our annual ALS Gala offers a night of excitement, fun …
ALS Recovery Fund 17th Annual 5K/10K Walk/Run in Coconut Grove
Every year the ALS Recovery Fund (www.alsrecovery.org) hosts a 5K/10K Walk/Run to raise funds that support ALS patient care and …
UM and Orphazyme Announce Successful Phase II Trial of Arimoclomol in ALS Patients
Data presented at international symposium demonstrate safety and preliminary evidence of efficacy Arimoclomol, a heat shock protein-based therapy, shows promise …
Biomarker for ALS disease progression identified
The absence of suitable biomarkers for amyotrophic lateral sclerosis (ALS) poses a major obstacle to therapy development. For this reason, …
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