News and Events
CReATe Author Series: Ep. 3 – Dr. Michael Benatar and Neurofilament Biomarkers for ALS
Dr. Michael Benatar is the Walter Bradley Chair in ALS Research, a Professor of Neurology at the University of Miami …
Pre-Symptomatic ALS Clinical Trial Paves the Way for Early Intervention Strategies in Neurodegenerative Diseases
October 22, 2021 (University Of Miami press release) A groundbreaking clinical trial for unaffected individuals at risk for a genetic …
Learn how you can contribute to ALS research by donating CSF
Many neurological disorders are poorly understood, in large part because researchers have few opportunities to directly study the brain and …
Miller School Studies Pave the Way for the First Pre-Symptomatic ALS Trial for Individuals with SOD1 Genetic Mutation
December 9, 2020 (University Of Miami press release) For more than a decade, investigators at the University of Miami Miller …
ALS Center investigators host first international Pre-Symptomatic ALS Workshop
The first Pre-Symptomatic ALS Workshop, organized and hosted by Dr. Michael Benatar (University of Miami), took place in Miami on …
Rare Diseases are Not Rare but Awareness is Endangered
To help raise awareness about rare diseases, the National Center for Advancing Translation Science (NCATS) hosts an annual ‘Rare Diseases …
The Future Is Now: ALS Research at the University of Miami
The ALS Center’s own Michael Benatar MD, PhD spoke on “The Future is Now: ALS Research at the University of …
Biomarkers for ALS Therapy Development
Dr. Michael Benatar, Executive Director of the University of Miami’s ALS Center, gave a webinar about Biomarkers at the …
University of Miami ALS Center to Receive Critical Funding from the State of Florida
September 25, 2020 (University Of Miami press release) On June 29, 2020, Governor Ron DeSantis approved $800,000 in funding for …
Research survey for rare disease patients and their families about impacts of COVID-19
How is the novel coronavirus pandemic impacting people with rare diseases and their families? Complete the 20-minute research survey from …
UM Researchers’ Validation of ALS Biomarker Could Accelerate Development of New Therapies
May 8, 2020 (University Of Miami press release) “Therapy development for ALS is challenging for many reasons,” said Michael Benatar, …
CReATe Consortium Aims for ALS Breakthroughs with NIH Renewal Grant
October 4, 2019 (University of Miami press release) An international research consortium led by investigators at the University of Miami …
The Kess Golf Cup in New York
The Kess Golf Cup is an annual golf day organized by Paul, Mark and Barbara Kessenich, children of the late …
Annual Memorial Service at Oleta River State Park
Our Annual Memorial Service offers a non-denominational opportunity to remember and celebrates the lives of those who have lost the …
Annual ALS Patient Symposium
The ALS Patient Symposium is an annual educational event, offering patients, family members and health care providers an opportunity to …
University of Miami ALS Center Annual ALS Gala
With amazing silent auctions, delectable cuisine, VIP cocktails and music, our annual ALS Gala offers a night of excitement, fun …
ALS Recovery Fund 17th Annual 5K/10K Walk/Run in Coconut Grove
Every year the ALS Recovery Fund (www.alsrecovery.org) hosts a 5K/10K Walk/Run to raise funds that support ALS patient care and …
UM and Orphazyme Announce Successful Phase II Trial of Arimoclomol in ALS Patients
Data presented at international symposium demonstrate safety and preliminary evidence of efficacy Arimoclomol, a heat shock protein-based therapy, shows promise …
Biomarker for ALS disease progression identified
February 27, 2017 (University of Miami press release) The absence of suitable biomarkers for amyotrophic lateral sclerosis (ALS) poses a …
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