News and Events

University of Miami ALS Center to Receive Critical Funding from the State of Florida


On June 29, 2020, Governor Ron DeSantis approved $800,000 in funding for the Bitner Plante ALS Initiative of Florida in …

CReATe Consortium ALS Untangled Series: 32- L-Carnitine


Carnitines are inexpensive, generally safe forms of amino acids. There are several mechanisms by which different carnitines might theoretically be …

Research survey for rare disease patients and their families about impacts of COVID-19


How is the novel coronavirus pandemic impacting people with rare diseases and their families? Complete the 20-minute research survey from …

UM Researchers’ Validation of ALS Biomarker Could Accelerate Development of New Therapies


“Therapy development for ALS is challenging for many reasons,” said Michael Benatar, M.D., Ph.D., professor of neurology, the Walter Bradley …

ALS Center investigators host first international Pre-Symptomatic ALS Workshop


The first Pre-Symptomatic ALS Workshop, organized and hosted by Dr. Michael Benatar (University of Miami), took place in Miami on …

CReATe Consortium Aims for ALS Breakthroughs with NIH Renewal Grant


An international research consortium led by investigators at the University of Miami Miller School of Medicine has made significant progress …

The Kess Golf Cup in New York


The Kess Golf Cup is an annual golf day organized by Paul, Mark and Barbara Kessenich, children of the late …

Annual Memorial Service at Oleta River State Park


Our Annual Memorial Service offers a non-denominational opportunity to remember and celebrates the lives of those who have lost the …

Annual ALS Patient Symposium


The ALS Patient Symposium is an annual educational event, offering patients, family members and health care providers an opportunity to …

University of Miami ALS Center Annual ALS Gala


With amazing silent auctions, delectable cuisine, VIP cocktails and music, our annual ALS Gala offers a night of excitement, fun …

ALS Recovery Fund 17th Annual 5K/10K Walk/Run in Coconut Grove


Every year the ALS Recovery Fund (www.alsrecovery.org) hosts a 5K/10K Walk/Run to raise funds that support ALS patient care and …

UM and Orphazyme Announce Successful Phase II Trial of Arimoclomol in ALS Patients


Data presented at international symposium demonstrate safety and preliminary evidence of efficacy Arimoclomol, a heat shock protein-based therapy, shows promise …

Biomarker for ALS disease progression identified


The absence of suitable biomarkers for amyotrophic lateral sclerosis (ALS) poses a major obstacle to therapy development. For this reason, …

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