News and Events

Rare Diseases are Not Rare but Awareness is Endangered


To help raise awareness about rare diseases, the National Center for Advancing Translation Science (NCATS) hosts an annual ‘Rare Diseases …

The Future Is Now: ALS Research at the University of Miami


The ALS Center’s own Michael Benatar MD, PhD spoke on “The Future is Now: ALS Research at the University of …

Biomarkers for ALS Therapy Development


  Dr. Michael Benatar, Executive Director of the University of Miami’s ALS Center, gave a webinar about Biomarkers at the …

CReATe Consortium ALS Untangled Series: Ep. 34- Ursodiol


Ursodiol or ursodeoxycholic acid (UDCA) is a bile acid derivative of cholesterol. Since it can have antioxidant, anti-inflammatory and anti-apoptotic …

University of Miami ALS Center to Receive Critical Funding from the State of Florida


On June 29, 2020, Governor Ron DeSantis approved $800,000 in funding for the Bitner Plante ALS Initiative of Florida in …

Research survey for rare disease patients and their families about impacts of COVID-19


How is the novel coronavirus pandemic impacting people with rare diseases and their families? Complete the 20-minute research survey from …

UM Researchers’ Validation of ALS Biomarker Could Accelerate Development of New Therapies


“Therapy development for ALS is challenging for many reasons,” said Michael Benatar, M.D., Ph.D., professor of neurology, the Walter Bradley …

ALS Center investigators host first international Pre-Symptomatic ALS Workshop


The first Pre-Symptomatic ALS Workshop, organized and hosted by Dr. Michael Benatar (University of Miami), took place in Miami on …

CReATe Consortium Aims for ALS Breakthroughs with NIH Renewal Grant


An international research consortium led by investigators at the University of Miami Miller School of Medicine has made significant progress …

The Kess Golf Cup in New York


The Kess Golf Cup is an annual golf day organized by Paul, Mark and Barbara Kessenich, children of the late …

Annual Memorial Service at Oleta River State Park


Our Annual Memorial Service offers a non-denominational opportunity to remember and celebrates the lives of those who have lost the …

Annual ALS Patient Symposium


The ALS Patient Symposium is an annual educational event, offering patients, family members and health care providers an opportunity to …

University of Miami ALS Center Annual ALS Gala


With amazing silent auctions, delectable cuisine, VIP cocktails and music, our annual ALS Gala offers a night of excitement, fun …

ALS Recovery Fund 17th Annual 5K/10K Walk/Run in Coconut Grove


Every year the ALS Recovery Fund (www.alsrecovery.org) hosts a 5K/10K Walk/Run to raise funds that support ALS patient care and …

UM and Orphazyme Announce Successful Phase II Trial of Arimoclomol in ALS Patients


Data presented at international symposium demonstrate safety and preliminary evidence of efficacy Arimoclomol, a heat shock protein-based therapy, shows promise …

Biomarker for ALS disease progression identified


The absence of suitable biomarkers for amyotrophic lateral sclerosis (ALS) poses a major obstacle to therapy development. For this reason, …

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