News and Events

CReATe Consortium Aims for ALS Breakthroughs with NIH Renewal Grant


An international research consortium led by investigators at the University of Miami Miller School of Medicine has made significant progress …

The Kess Golf Cup in New York


The Kess Golf Cup is an annual golf day organized by Paul, Mark and Barbara Kessenich, children of the late …

Annual Memorial Service at Oleta River State Park


Our Annual Memorial Service offers a non-denominational opportunity to remember and celebrates the lives of those who have lost the …

Annual ALS Patient Symposium


The ALS Patient Symposium is an annual educational event, offering patients, family members and health care providers an opportunity to …

University of Miami ALS Center Annual ALS Gala


With amazing silent auctions, delectable cuisine, VIP cocktails and music, our annual ALS Gala offers a night of excitement, fun …

ALS Recovery Fund 17th Annual 5K/10K Walk/Run in Coconut Grove


Every year the ALS Recovery Fund (www.alsrecovery.org) hosts a 5K/10K Walk/Run to raise funds that support ALS patient care and …

UM and Orphazyme Announce Successful Phase II Trial of Arimoclomol in ALS Patients


Data presented at international symposium demonstrate safety and preliminary evidence of efficacy Arimoclomol, a heat shock protein-based therapy, shows promise …

Biomarker for ALS disease progression identified


The absence of suitable biomarkers for amyotrophic lateral sclerosis (ALS) poses a major obstacle to therapy development. For this reason, …

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