Events

Rare Diseases are Not Rare but Awareness is Endangered


To help raise awareness about rare diseases, the National Center for Advancing Translation Science (NCATS) hosts an annual ‘Rare Diseases …

The Future Is Now: ALS Research at the University of Miami


The ALS Center’s own Michael Benatar MD, PhD spoke on “The Future is Now: ALS Research at the University of …

Biomarkers for ALS Therapy Development


  Dr. Michael Benatar, Executive Director of the University of Miami’s ALS Center, gave a webinar about Biomarkers at the …

The Kess Golf Cup in New York


The Kess Golf Cup is an annual golf day organized by Paul, Mark and Barbara Kessenich, children of the late …

Annual Memorial Service at Oleta River State Park


Our Annual Memorial Service offers a non-denominational opportunity to remember and celebrates the lives of those who have lost the …

Annual ALS Patient Symposium


The ALS Patient Symposium is an annual educational event, offering patients, family members and health care providers an opportunity to …

University of Miami ALS Center Annual ALS Gala


With amazing silent auctions, delectable cuisine, VIP cocktails and music, our annual ALS Gala offers a night of excitement, fun …

ALS Recovery Fund 17th Annual 5K/10K Walk/Run in Coconut Grove


Every year the ALS Recovery Fund (www.alsrecovery.org) hosts a 5K/10K Walk/Run to raise funds that support ALS patient care and …

Join our family - together, we can change the course of this disease.

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Together, we can change the course of this disease.

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