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Pre-Symptomatic ALS Clinical Trial Paves the Way for Early Intervention Strategies in Neurodegenerative Diseases

Pre-Symptomatic ALS Clinical Trial Paves the Way for Early Intervention Strategies in Neurodegenerative Diseases

by Michael Benatar | Dec 14, 2021 | Events, Press Releases, Research Highlights

October 22, 2021 (University Of Miami press release) A groundbreaking clinical trial for unaffected individuals at risk for a genetic form of amyotrophic lateral sclerosis (ALS) could pave the way for early intervention strategies for other forms of ALS as well as a...
Learn how you can contribute to ALS research by donating CSF

Learn how you can contribute to ALS research by donating CSF

by Michael Benatar | Jul 1, 2021 | Events, Press Releases, Research Highlights

Many neurological disorders are poorly understood, in large part because researchers have few opportunities to directly study the brain and spinal cord. However, since cerebrospinal fluid (CSF), sometimes referred to simply as spinal fluid, baths the brain and spinal...
Miller School Studies Pave the Way for the First Pre-Symptomatic ALS Trial for Individuals with SOD1 Genetic Mutation

Miller School Studies Pave the Way for the First Pre-Symptomatic ALS Trial for Individuals with SOD1 Genetic Mutation

by Michael Benatar | Dec 11, 2020 | Events, Press Releases, Research Highlights

December 9, 2020 (University Of Miami press release) For more than a decade, investigators at the University of Miami Miller School of Medicine have been studying the earliest signs of amyotrophic lateral sclerosis (ALS). Now, armed with biomarkers and findings from...
ALS Center investigators host first international Pre-Symptomatic ALS Workshop

ALS Center investigators host first international Pre-Symptomatic ALS Workshop

by Michael Benatar | Oct 18, 2020 | Events, Press Releases, Research Highlights

The first Pre-Symptomatic ALS Workshop, organized and hosted by Dr. Michael Benatar (University of Miami), took place in Miami on January 27th, 2020. This Workshop brought together ~40 specialists in the fields of ALS, frontotemporal dementia (FTD), other...
Rare Diseases are Not Rare but Awareness is Endangered

Rare Diseases are Not Rare but Awareness is Endangered

by Michael Benatar | Sep 10, 2020 | Events, Research Highlights

To help raise awareness about rare diseases, the National Center for Advancing Translation Science (NCATS) hosts an annual ‘Rare Diseases are Not Rare’ challenge. Members of the ALS Center research team participated in this challenge. Please see below to view our...
University of Miami ALS Center to Receive Critical Funding from the State of Florida

University of Miami ALS Center to Receive Critical Funding from the State of Florida

by Michael Benatar | Jul 23, 2020 | Press Releases, Research Highlights

September 25, 2020 (University Of Miami press release) On June 29, 2020, Governor Ron DeSantis approved $800,000 in funding for the Bitner Plante ALS Initiative of Florida in the 2020-2021 budget. This Initiative provides support for ALS patients receiving treatment...
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